Childrens Hospice Week (CHW) is currently the only awareness and fundraising week for children with serious conditions, of its kind. These children’s hospices greatly need support and Childrens Hospice Week will go a long way to help with funding, but will also help share stories or strength and bravery to improve the public’s understanding of what life is like for families with a terminally ill child.
Being told your child has a life-limiting or life-threatening illness can turn your world upside down, and this is where children’s hospices can be a massive lifeline in helping families cope and help create precious memories that will last a lifetime.
What is the aim of Childrens Hospice Week?
Last year Childrens Hospice Week concentrated on families, with the aim of giving the public an idea of what families go through when caring for a seriously ill child. It highlighted how precious family time is and helped the public understand how the extensive range of services offered by children’s hospices can play a pivotal role in supporting families.
This Year, Childrens Hospice Week aims to “turn up the volume” on children’s terminal illness. It wants to raise awareness of the sheer number of children suffering life-limiting illnesses and to praise the services available that help the child and their family.
Not only do children’s hospices help care for seriously ill children, but many put a lot of effort into other services such as bereavement counselling, especially where siblings are involved. Children’s hospices will put considerable effort into to helping the brothers and sisters of the children being cared for at the hospice and will look to help them emotionally during what is an extremely confusing time for them.
Hospices are bright and happy places, focusing on helping families make the most of every moment.
Also, a lot of people still think hospices are dark, dingy and unpleasant places (just look at the way EastEnders portrayed a hospice in one of their storylines a year ago), but this couldn’t be further from the truth. Children’s Hospice South West is keen to stress that contrary to popular belief, “hospices are bright and happy places focusing on helping families make the most of every moment”
Children’s hospices rely on public support as they are all charitable organisations. No one would ever want to make use of a hospice, but if the occasion arises then they are invaluable in the support they offer and the comfort they provide to the person who is seriously ill.
If you would like more information on Childrens Hospice Week, or how you can get involved, then please visit the Together for Short Lives website. You can also show your support for Childrens Hospice Week on Twitter (@Tog4ShortLives) by using #ChildrensHospiceWeek and posting on the hashtag #UpTheVolume.